What is dementia?
Dementia is a progressive intellectual disability. It is caused by the brain being damaged by diseases that get worse over time, and which cannot be treated. The most common type is Alzheimer’s Disease.
Image of a brain
Dementia is a progressive intellectual disability. It is caused by the brain being damaged by diseases that get worse over time, and which cannot be treated. The most common type is Alzheimer’s Disease.
There are a lot of myths about dementia. Debunking myths and misconceptions about dementia helps reduce stigma and empowers people with accurate understanding.
How many of these have you heard before??
[Select each one to see what it’s really like to live with dementia.]
Myth: "Dementia is just a part of ageing"
Dementia isn't a normal part of getting older – it's the result of diseases in the brain.
Myth: "Only really old people get it."
Dementia can actually affect people as young as 40, no matter their background or lifestyle. It's important to get a diagnosis of dementia as early as possible.
Myth: "Dementia destroys the person, leaving an empty shell behind."
Dementia does not destroy the person, but the changes happening in their brain can affect their memory and skills. The person still has their own views, reactions and feelings, even if it is difficult for you to understand them.
Myth: "Dementia is just when you become forgetful."
Losing your ability to remember is one symptom of dementia, but there are many others.
"I think about how eventually my memories will be switched off – like lights going out in a building.
Those at the top go out first – my memories from yesterday, or last week.
Then it's the floors further down. My last holiday, or my son's wedding – and eventually even the memory of having a son at all.
In the end it's just the ground floor left. Only my oldest memories: my childhood, my parents."
Bupa was a natural choice for Sharon’s mother-in-law Kamal and husband Suresh, with peace of mind for the family that Kamal’s care needs are met, alongside continued retirement living for Suresh.
Bupa’s person first, dementia second philosophy was essential in Dianne’s decision to move her husband Billy to a care home. She and Bupa have worked together to ensure Billy gets the care he needs.
Hear from our residents and their families about life at Bupa.
Each part of the brain is responsible for a different purpose.
When a person is affected by dementia, it can become very difficult to do the everyday things we take for granted. Dementia stops their brain from working properly.
The frontal lobe
If dementia affects this area of your brain, it can be harder to make plans and decisions. You may also find it difficult to control your emotions.
The parietal lobe
If dementia affects this part of your brain, you'll find it difficult to remember how to do routine things, as well as more complicated activities like writing and cooking.
The occipital lobe
If dementia affects this area of your brain, it makes it harder for you to make sense of the world, leading to confusion and fear.
The cerebellum
If you're affected by dementia in this part of the brain you will have problems with movement, posture and balance.
The brain stem
This part of the brain controls vital life functions. If you're affected by dementia in this area, you could have issues with swallowing, breathing and heart problems.
The temporal lobe
This area of your brain controls language and memory. If dementia affects this area, you will struggle with communicating and remembering things.
There are many types of dementia. Some are more common than others.
"I have Alzheimer’s disease, the most common form of dementia. Some of my abilities are beginning to decline. Recently I found that I forget things and have problems finding the right words. It’s hard to remember people’s names and last week I got lost while out shopping."
"I have vascular dementia caused by many tiny strokes. At the moment I have no problems with language, memory, thinking or making decisions. But I am finding that writing is becoming increasingly difficult. Recently I had to give up my painting hobby because I can no longer control my hand movements."
"I have Dementia with Lewy bodies. My memory is pretty good. But I have started having hallucinations where I see children. I have trouble sleeping at night which makes me drowsy during the day. I am often asleep when my family try to visit."
"I have been diagnosed with mixed dementia. This means I have symptoms of more than one type of dementia."
By understanding dementia and seeing the person first, and their dementia second, we can help build a dementia inclusive New Zealand.
Everyone is unique – and by respecting a person's experiences and feelings we can help them, their families and whānau to live well with dementia.
Take Alzheimers New Zealand's simple 15 minute questionnaire and become a ‘Dementia friend’ today.
Read our guide on how to communicate and connect with someone living with dementia.
Recognising when someone may be struggling with dementia helps us respond with empathy and connect with them in a way that feels supportive. Below are examples of scenarios where a person may be showing signs of dementia.
"I'm scared to go out on my own, The other day I went to go and visit a neighbour down the road, and I found myself in the wrong street."
Memory problems can include getting lost, not remembering recent experiences and forgetting who friends and family are.
"We went out food shopping and my wife asked me what shall we have for dinner. I couldn’t decide. I got myself into a real muddle and became really angry. I find myself wanting my wife to organise everything for me, to make my life easier."
Thinking problems can include difficulty planning activities and making decisions.
"My daughter took me to my granddaughter’s party. I got inside the house and just panicked. It didn’t feel like her house. I wanted to go home. I know it must be tough for my daughter to see me this way."
Place and time problems, as well as forgetting the day and time, are common. People may not recognise their surroundings as familiar, and may want to leave due to it feeling strange.
"I get worried about leaving my familiar environment.When I get past the end of the driveway, I grip my wife’s hand tightly and my breathing gets faster. But I know I can’t stay in all the time."
Changes to emotions – becoming upset, angry and anxious can be a result of living with the insecurities and uncertainties caused by dementia.
"I always loved to cook seafood. But now when I go to the fish shop, I can’t seem to find the right words. The shop keeper tries to help by suggesting words, but I just get angry."
Communication problems include difficulties finding the right words and understanding what people are saying.
"Once at the hospital, I accidentally wet myself, I was nervous and couldn’t find the toilet in time because all the signs looked the same. I was so ashamed. Luckily the nurses understood and told me not to worry."
Social difficulties can include avoiding people and conversations and inappropriate behaviour and language.
There are many things we're still learning about dementia and its causes.
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